Orphan is about the dramatic quest to save the lives of children who are born with rare genetic disorders. The book describes the history and clinical progress against these diseases with compelling stories of the children they impact, and the physicians, scientists, and parents who provide help and support. More than a book about disease and research, Orphan gives voice to thousands who have endured illnesses in silence, and recounts extraordinary breakthroughs and hopes for the future.
"a very interesting and readable history of the various approaches ... to first understand and then treat children who suffer from rare genetic diseases."
J. Craig Venter, PhD, Chairman and CEO, J. Craig Venter Institute, and a pioneer in human genomics
Hardcover, 408 pages, illustrated, index
Cold Spring Harbor Laboratory Press | 500 Sunnyside Blvd. | Woodbury | NY | 11797
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